Tuesday, February 8, 2011

Admited to Pediatric ICU

CeCe had her surgery today for her laryngo malacia and it went well. The surgeon came out and said it went very well. He had me a little upset right beforehand saying that he was concerned that it would be related to her Chiari and Spina Bifida when he had told us two weeks ago that it was in no way related. Geez.

She was in recovery and the stridor seemed to be gone...then she woke up. The stridor is still there in full force indictating that something else is also going on. The ENT came back by and said the sound was consistent with a problem with her vocal cords. He scoped her again (with us in the room, ugh) and said that he could see her left vocal cord move but her right one has paresis (sp?) Everything goes sort of fuzzy from here...

What this means is:
a. she made need a trach tube
b. she may need decompression surgery for her brain to have more room.
c. her shunt may need to be adjusted b/c the fluid in her brain is pushing on her vocal cord never and causing the "weakness" (or paresis).

Neuro has been consulted and they came and adjusted her shunt again. Their hope is that if they relieve the pressure, the stridor and paresis will be fixed....THIS IS WHAT WE SO WANT IT TO BE. The alternatives and decisions we face otherwise, are too much for me to comprehend right now.

Please keep CeCe is your thoughts and prayers.


  1. Praying for your precious girl... And you guys too Jen:)

  2. OH Jen, I am still praying for you guys!!

  3. Just prayed for your sweet baby girl. I'm sorry she is having to go through so much. I pray that the doctors find the right path to meet her need. Praying for you and your husband as well.