Tuesday, March 27, 2012

And away she goes!

CeCe got her first walker yesterday and took to it like a fish to water. What a blessing it is to watch her tear up the living room, NASCAR -style.

She got it so quickly...she didn't want any help from her PT...as shown here...


Ok. Ok....maybe she didn't love it the WHOLE time... :)

Tuesday, March 13, 2012

All walks of life

What a surreal experience it has been to move to a new neighborhood. Packing up all your memories (and junk) into little boxes and transporting all to something you hope is a bigger better change for your family. We are in a new place where no one knows our history and I find myself wondering how/when/if to tell them about CeCe or let them just meet her and SEE for themselves rather than putting her limitations and expectations out there for them ahead of time. Last night we met a new neighbor with a child just slightly younger than CeCe and I didn't mention a thing and none of it seemed to matter. I liked that....I like it here.

CeCe had an OT (Occupational Therapy) evaluation last week to check about her thumb tucking when she crawls and it has been deemed "just a habit, not a problem"...yea! She also had PT yesterday and in addition...she has the hand-eye coordination of an 18 month old, yea, again! She has also grown out of her first set of "Magic Shoes", she is going to be getting a reverse walker. It looks like this..

As soon as the PT said it, I immediately grabbed CeCe a little tighter. It's hard still for me to know she needs "Assisted Devices"...that lasted about 2 seconds and then I thought. "Awesome! She'll be able to cruise around with this!" Knowing it will all take a little getting used too..but what doesn't?

She also got a great report from her teacher yesterday...She is playing outside with the other kids (a goal of ours as the weather gets warmer)and can get up the slide, down the slide and go through the tunnel...ALL BY HERSELF...I just may stalk the bushes in the next few days to see it myself. Here's a video of her going up and down our stairs in the new house...something she did DAY 2 here and NEVER did in the old joint...

Anyway...enough bragging.  Team CeCe is well underway and gearing up for the first NC/SC sb walk on May 5th.  Be a pal and donate to the cause or better yet, JOIN US!  http://www.walknrollncsc.org/faf/search/searchTeamPart.asp?ievent=1014740&lis=1&kntae1014740=7AC5CB812B2F4D53BAF73004437C827D&team=4975325

Also, keep us in your prayers going into May...CeCe has another big MRI coming up to check her syrinx and fluid around her brain...all seems to be really well, but we loathe the sedated MRIs (probably not too much fun for her either, come to it.)

Here's some current pics of our Super Girl!