Saturday, November 27, 2010

Sorry for the delay...

We are doing just fine. Cece was back on the cannula yesterday but they took her back off today thinking she can do it all on her own. Neurosurgery came back to check on here yesterday and again today...she has quite a bit of bruising around the incision but that is to be expected. She has shown no signs of CSF (cerebral spinal fluid) leaking...which is awesome...but something we need to keep an eye on until the incision heals.

The physical therapist came back and put her through the paces. She passed every muscle test excpet for being able to push back/away with her gluteal muscle and pointing her toe. She may be able to do that still as she was only 2 days post surgery at the time. The PT will be back on Monday.

They took her off her supplemental nutrition today too...she's on milk now entirely...that is great news because the nutrition needles are REALLY hard on her veins and caused them to have to keep finding new places to stick her. She's pretty bruised up from all that too.

I was discharged yesterday and we are now at the RMH for the duration. The rooms are small and cramped but the place has very nice facilities and a shuttle van to and from the hospital several times a day.

They have scheduled another head ultrasound to look at her ventricles on Monday (was going to be on Sunday) and we should get the results the same day. Her fontanelle is still soft and sunken...just how we want it.

I guess that's about it. Brian and Caroline and I are off to visit again. I am planning on staying here at the hospital tonight in a sleeping room if I get one available...we won't know until 5:00pm...but I'd like to be here with her if I's too hard leaving here at night. I'll update later if I can!

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