Friday, January 21, 2011

Back from ENT...

The pediatric ENT has agreed that CeCe does have laryngomalacia and on a scale from 1 to 10...10 being the most severe...CeCe is a 9 or a 10. He basically had to re-run the endoscopy and we watched with him on the monitor as he looked around in there...weird to watch and see her crying from the inside out! He also confirmed that her vocal cords are working normally (which we thought had already been confirmed) but he wanted to double check as there was 20% of her having that issue as well. Please remember this has nothing to do with her SB...lots of kids have this.

So, where do we go from here? They want to put her on some very pricey medicine for the next 3 weeks as well as saline nasal spray to clear up her congestion...poor kid is having a rough time with this cold...and then we will go back for his re-evaluation on February 11th.

**Sigh**...if she isn't any better (or better enough) he will have to do a surgery on February 15 that will snip the area around the larynx and fix it that way....which of course means another hospital stay. We've gotten to know the nurses already...I'm not sure that's a claim to fame we really want to have. That's about it for now.

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