Neurosurgery appt was a little rough today....we waited for 1.5 hours just to be seen and then when we were seen, the doctor said he was ready to put in her shunt. We knew this was probably coming, but we still aren't ready to do it. We met him in the middle with this...he said there is a chance that her fluid will stabalize, but he didn't seem too confident. He ordered an immediate CT scan....and after the office ladies argued with the insurance company, we were able to send her in for one right then.
The scan showed that her ventricles have enlarged again and he is worried about pressure on her brain. So, because we aren't just ready to go ahead and do the surgery, we made an appt for next Tuesday when they will repeat the CT scan and see where we are then. If we all agree at that time, her shunt suregery will be next wednesday. Again, shunting is the case with 80% of SB kids...she's just so little and has been through so much.
On a brighter note, we also had her urology appt. today...he just did a quick check and gave her the thumbs up...for now. He has also ordered another xray and u/s of her bladder and kidneys next week and scheduled a f/u appt in 2 weeks.
All in all...nothing really new...just progression of what we already knew.